Hello
A Peek into My Personal Healthcare Protocol
Welcome! I'm John, a 32 year old man living with Spinal Muscular Atrophy Type 2. My goals are longevity and general health. This is where I share my personal healthcare protocol, including tips on supplements, skin, and hair care. I believe in taking care of your body from the inside out, and I'm excited to share my journey and tips with you. So grab a coffee and let's get started! Donations and purchases via links below are very much appreciated.
Living with Spinal Muscular Atrophy
Living with spinal muscular atrophy (SMA) demands a comprehensive approach to nutrition and supplementation to address its multifaceted challenges. Understanding the underlying mechanisms of SMA and the potential role of nutrients and supplements is crucial. Research delves into various aspects of SMA, including oxidative stress, muscle degeneration, and impaired neuromuscular function. Studies such as "Nutritional Interventions in Spinal Muscular Atrophy: From Clinical Evidence to Ethical Considerations" and "Muscle wasting in spinal muscular atrophy: a role for nutrition and physical activity" emphasize the impact of oxidative stress on SMA pathology and the potential benefits of antioxidant supplementation. Investigations like "Vitamin D ameliorates oxidative stress and muscle wasting in spinal muscular atrophy", "Coenzyme Q10 reduces lipid peroxidation and muscle atrophy in spinal muscular atrophy", "A pilot study to determine the safety, tolerability, and potential effects of high dose omega-3 fatty acids in spinal muscular atrophy", and "Therapeutic potential of DHEA for sarcopenia and spinal muscular atrophy: A comprehensive review" contribute to our understanding of nutritional interventions for SMA. Understanding these findings can inform personalized approaches to nutrition and supplementation for individuals with SMA, potentially enhancing their quality of life and slowing disease progression. Collaboration with healthcare professionals is essential for developing tailored regimens based on individual needs and medical history. By staying updated and working closely with healthcare providers, SMA individuals can optimize their nutritional status and enhance their health outcomes.
Supplements:
I take the all of the following supplements on a daily basis. My goals are to promote general well being, promote longevity and delay muscle wasting and other forms of physical decline. Below each will be a brief description of benefits as well as a purchase link and relevant studies. More information on specific dosages and costs can be found on my
supplement protocol spreadsheet. I recommend introducing supplements individually to assist in case of adverse reactions.
Please note: This is not medical advice. The presence or absence of any supplement from the list below is not meant to encourage or discourage use. A variety of factors and variables determine what I consume, and I regularly modify my protocol as a new research emerges.
Multivitamin
Packed with 23 essential vitamins and minerals to support men’s health, plus organic fruits and vegetables for whole food nutrition and antioxidant support, all in just one daily multivitamin for men.
Nicotinamide Riboside
Cellular Energy Production, Mitochondrial Health, NAD+ Boosting, Anti-Aging Effects, Cognitive Function Support, Metabolic Health, Potential Cardiovascular Benefits (Note: Consult with a healthcare professional for personalized advice and information.)
Pterostilbene
This includes Trans-Resveratrol: Antioxidant Properties, Cognitive Function Support, Cardiovascular Health, Blood Sugar Regulation, Anti-Inflammatory Effects, Potential Cancer Prevention (Note: Consult with a healthcare professional for personalized advice and information.)
Omega 3
This includes EPA, DHA & Omega 3 fatty acids: Cardiovascular Health, Anti-Inflammatory Effects, Cognitive Function Support, Joint Health, Mood Regulation, Skin Health, Immune System Support, Cognitive Function Support, Brain Health, Eye Health (Note: Consult with a healthcare professional for personalized advice and information.)
CoQ10
Energy Production, Cardiovascular Health, Antioxidant Properties, Cellular Health, Migraine Prevention, Blood Pressure Regulation, Exercise Performance Enhancement (Note: Consult with a healthcare professional for personalized advice and information.)
Pyrroloquinoline Quinone
Mitochondrial Function Support, Energy Production, Cognitive Function Enhancement, Antioxidant Properties, Neuroprotection, Heart Health, Anti-Inflammatory Effects (Note: Consult with a healthcare professional for personalized advice and information.)
Curcumin Turmeric
Anti-Inflammatory, Antioxidant, Joint Health, Digestive Health, Cognitive Function, Heart Health, Arthritis Relief, Cancer Prevention (Note: While there is some research suggesting potential benefits, it's essential to consult with a healthcare professional for personalized advice.)
Lactoferrin
Immune System Support, Antioxidant Properties, Gut Health, Anti-Inflammatory Effects, Iron Absorption Regulation, Potential Antimicrobial Properties (Note: Consult with a healthcare professional for personalized advice and information.)
Boron
Cognitive Function, Bone Health, Joint Health, Hormonal Balance, Wound Healing, Immune System Support, Arthritis Relief
Magnesium L-threonate
Cognitive Function Support, Memory Enhancement, Brain Health, Potential Anxiety Reduction, Sleep Quality Improvement (Note: Magnesium L-threonate is a form of magnesium that is thought to have better bioavailability for the brain. Its effects may vary, and it's recommended to consult with a healthcare professional for personalized advice.)
Bio-Fisetin Blend
Antioxidant Properties, Anti-Inflammatory Effects, Neuroprotective Properties, Potential Anti-Cancer Benefits, Cardiovascular Health Support (Note: Fisetin is a naturally occurring flavonoid found in certain fruits and vegetables. Its effects and benefits may vary, and it's recommended to consult with a healthcare professional for personalized advice.)
Taurine
Cardiovascular Health, Eye Health, Cognitive Function, Antioxidant Properties, Energy Metabolism, Muscle Function, Stress and Anxiety Reduction, Electrolyte Balance
Lithium
Mood Stabilization, Bipolar Disorder Management, Depression Treatment, Cognitive Function, Neuroprotection
Lion's Mane
Cognitive Function Enhancement, Nervous System Support, Memory Improvement, Mood Regulation, Potential Neuroprotective Effects, Immune System Support, Anti-Inflammatory Properties, Digestive Health (Note: Consult with a healthcare professional for personalized advice and information.)
Ultimate Mushroom Complex
This includes Maitake, Chaga, Turkey tail, Reishi & Cordyceps: Immune System Support, Antioxidant Properties, Blood Sugar Regulation, Cholesterol Management, Blood Pressure Regulation, Weight Management, Cancer Prevention, Inflammation Reduction, Liver Health, Blood Sugar Regulation, Potential Cancer-Fighting Properties, Digestive Health, Respiratory Health, Liver Health, Immune System Support, Stress Reduction, Sleep Improvement, Energy Boost, Exercise Performance Improvement, Potential Anti-Aging Effects, Adaptogenic Properties, Libido Enhancement (Note: Consult with a healthcare professional for personalized advice and information.)
LET'S GET
PHYSICAL
In addition to nutrition and supplementation, maintaining physical health is paramount for individuals living with spinal muscular atrophy (SMA). While SMA leads to muscle weakness and atrophy, incorporating stretching and muscle usage into daily routines can help preserve existing muscle strength and function. Regular stretching exercises can improve flexibility, reduce muscle stiffness, and enhance overall mobility, making daily activities more manageable. Engaging with new technologies such as VR and video games that require hand and arm motion is a great organic form of OT. Handwriting and typing is another important form of OT. Additionally, engaging in low-impact exercises, such as gentle resistance training or range-of-motion exercises, can help maintain muscle tone and prevent further muscle wasting. Physical activity also promotes circulation, which is essential for delivering oxygen and nutrients to muscles and tissues. By incorporating stretching and muscle usage into daily routines, individuals with SMA can optimize their physical health, enhance their quality of life, and potentially slow the progression of muscle weakness. It's crucial to work closely with healthcare professionals or physical therapists to develop a personalized exercise plan tailored to individual abilities and needs. With proper guidance and support, individuals with SMA can maximize their physical capabilities and maintain their overall well-being.
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